Day 32.2

     At a therapy appointment this evening, (an unnamed child) and I were given a homework assignment that coincidentally aligned with a thought I had the day before. We were told to pick 3 different five minute activities from a long list. The activities varied and weren’t to be done to completion, but only to the point that we were calmed down. We chose snuggling under a blanket, reading a portion of a book, and coloring. At the end of the fifteen minutes, this particular child and I were calmer than we had been since the 3:00 PM playground pickup. The rest of the house, not so much. 

     It’s hard for me to get started sometimes. On Monday I was supposed to start my training for the half marathon and I just couldn’t find the time to get on the treadmill. I started freaking out, but instead, I decided to get a quick but tough Pilates workout inbetween clients. 

            After performing "the magician"...

     All of a sudden I was centered. I had a sense of calm that I haven’t had for about two months. I want to hold onto this feeling by taking every opportunity I have to take care for myself- even if it’s 10 or 15 minutes. 

     2019 will be my year of calm moments. 

Day 31.2

     There was a song...

     

Mother's Little Helper

The Rolling Stones

What a drag it is getting old

"Kids are different today"

I hear ev'ry mother say

Mother needs something today to calm her down

And though she's not really ill

There's a little yellow pill

She goes running for the shelter of a mother's little helper

And it helps her on her way, gets her through her busy day

"Things are different today"

I hear ev'ry mother say

Cooking fresh food for a husband's just a drag

So she buys an instant cake and she burns her frozen steak

And goes running for the shelter of a mother's little helper

And two help her on her way, get her through her busy day

Doctor please, some more of these

Outside the door, she took four more

What a drag it is getting old

"Men just aren't the same today"

I hear ev'ry mother say

They just don't appreciate that you get tired

They're so hard to satisfy, You can tranquilize your mind

So go running for the shelter of a mother's little helper

And four help you through the night, help to minimize your plight

Doctor please, some more of these

Outside the door, she took four more

What a drag it is getting old

"Life's just much too hard today"

I hear ev'ry mother say

The pursuit of happiness just seems a bore

And if you take more of those, you will get an overdose

No more running for the shelter of a mother's little helper

They just helped you on your way, through your busy dying day

Songwriters: Keith Richards / Mick Jagger

Mother's Little Helper lyrics © Abkco Music, Inc

     I think my version would be called "Mother's Life Savers"

     The other day I went to Target to get my prescriptions with the two older children. One took the shopping cart and ran down a display of cough drops, while the other ran down the aisles, oblivious to what was happening around him. Usually I go solo to pick up my medications, but this time I needed to bring the kids. I always chat with the pharmacist about my children, but this day they were there, live and in person and putting on a show. I was embarrassed. They were making a scene. I said to her "Now you know why I'm on all these medications!" She got a kick out of me and quietly said to her co-worker, "I'll tell you later." I instead chose to announce to the other customers gathered around that my meds were for depression, anxiety, and birth control.

Why can't I shut my mouth?

     I wonder sometimes why I am so open with my struggles. Is it that I want to let other people know they aren't alone? Or am I trying to "out" myself before someone else can- like, if I make fun of myself first, it won't hurt when someone else does. I was always big on self deprecating humor, but recently I've gone towards over sharing as my defense mechanism.

     In the past two months, three new medications have been introduced. I'd been resistant to two of them for quite a while, but the truth is, I'm not my best self right now. In the past, more exercise, better sleep, and social time with friends could improve my mood. Now, it feels like nothing can get me out of the dark. I left my job to be the best mom I could be to these kids- what is the point if I'm incapacitated by my depression and anxiety. Most importantly, how can I help the child who is battling the same condition I am, if I cannot help myself.

     It's been two days with the new plan in place. This isn't a quick fix, and I've been working toward this with my doctors. There is a lot I need to sort through, not only for my children, but for myself. I'm fortunate to be alive in a time when mental health is taken seriously. I'm incredibly lucky to have access to health insurance and physicians who care for my well being and are not just looking to numb the pain. I want to enjoy this time in my life because while "things are different today", I think that's actually a positive.

Day 30.2

     It took more than 8 years, but I finally reached the breaking point. I should have seen it coming. As I sporadically cleaned the house today (in between tending to a sick child and washing all the laundry that was soiled in record time this morning-thanks stomach virus), I noticed the can of Crazy Aaron's Thinking Putty. It was open. It was empty. I thought that seemed odd, but the cries from bathroom kept my train of thought from completing it's journey.

     Fast forward to bedtime, I'm tucking Caroline into her "big girl" bed, complete with brand new pink/rainbow/embroidered quilt from Pottery Barn Kids, when something catches my eye.

The missing putty is no longer missing...

     There's a saying about death by a thousand paper cuts. I'm pretty sure that's been 2018 for me. Any one of the events that have taken place are manageable on their own- but the combination? The accumulation? It's too much. 

     I've been pretty non-specific about the details surrounding my time off from work. While I'm fine over sharing my own life, I hesitate to put it all out there about my children. This is where parents in our shoes become so isolated. In a way, it's less taboo to talk about a life threatening illness than a nuerodevelopmental disorder. The stigmas. The behaviors. The judgments.

     I thought I understood children with special needs. I've been working with them for 20+ years, a teacher for 15 of them. I've taken the classes, read the books, gone to professional development workshops, and sought out any opportunity to help me work with this particular segment of the population. I know that my patience and depth of knowledge has allowed me to modify curriculum so that every student could thrive in my classroom. This was a point of pride for me.

Enter my own children.

     It's quite an experience to parent children with atypical nuerodevelopment. We've had to completely change our lives- me leaving my job, approaching daily tasks in a painstaking step-by-step process, adjusting our routines to be exactly that-routine. Through it all, our boys are amazing, brilliant, and hilarious- because of, not in spite of their differences. I would not change a single thing about them.

     But it's exhausting. Planning each day so as not to set off anyone-choices for meals, clothing, wake-ups and bedtimes, sibling interactions, play dates, transportation to and from school, no detail can be overlooked because it all matters at this point. And I know there are those out there who may say that kids need to learn/get over/deal with it. Honestly, for a period, I was there too. However, many appointments, tests, and interventions later, we've arrived at this place.

     I also know that many who know my children may be completely thrown off because they seem so "normal". The thing is, they work so hard at being "on" in public view (kind of like their mother in that regard...), it makes home life that much more difficult. We work really freaking hard to keep the bad stuff out of sight.

     I reiterate that I understand that things could be worse. We are not dealing with a life threatening illness. Behavioral modifications and academic interventions will provide them with the support they need. We are financially able to have me out of work for another year. Our school district has been amazing and clearly cares for our children. We will survive. But it's so much harder than I ever knew it could be. And I'm publicly admitting that I'm struggling.

     Tonight I dealt with my stress through the slow draining of a bottle of wine and some therapeutic writing. Tomorrow, I will wake up and tackle the day-and the Crazy Aaron's Thinking Putty- with renewed energy and lighter load to bare, because I finally opened up to the fact that this really sucks.
 

Day 29.2

I love the fall season, but it will always come with difficult memories.

A hopeful second pregnancy for us. One that would end on October 19, 2009

     We had already been through enough heartache that year. The loss of my father-in-law, the difficulty with conception, the previous loss, and my mother-in-law's cancer diagnoses. This pregnancy started off fairly normal, although the heartbeat wasn't as strong at first. By the second ultrasound, things looked good and I was almost out of the first trimester. Then came the devastating news following a third check, although we didn't find out right away. On October 16, 2009 I had cramping and bleeding, so I went for an ultrasound. I left work early and made it in time for the last appointment. By the time the tech was done, I could tell something was off. She wouldn't show me the screen and all the doctors had left for the day. She said she couldn't share anything with me because a doctor had to review the results first but that I should go home and rest for the weekend. I laid on the couch for those two days and cried. I begged the universe to let me keep this baby. On Monday my doctor called to tell me that I had the option of passing the baby naturally or going in for a D&C. I wanted it over immediately.

     I've had four miscarriages. They were all terrible in their own way. The first time I couldn't quite wrap my head around the experience because it happened so quickly. I never even made it in to the doctor for the first visit. The third time I had Lucas, and the fourth I had both boys, so it felt different, because I had other children to focus on. I grieved for them all, but not the way I did with this child.

   The middle of October always hurts. There is an emptiness and vivid memories of not wanting to get out of bed in the morning, sitting on my porch in tears, and the self-loathing, thinking that something was wrong with me. The months that followed were hell. I would have given anything to have a baby. My job, my right arm- anything at all.

     Flash forward to today. I have three amazing children who have challenged and changed me in ways I never thought imaginable. When I find myself struggling, I think back to those dark moments in the fall of 2009. I would have done anything for my imagined children then, and now nine years later I have to live up to that. I prayed, wished, hoped, wanted- no, needed- these kids. And now, they need me. I will be taking a leave of absence from my job to focus on some special needs. Together as a family, I know we will be ok. They are here with us, and I must be here for them.

     Today is Pregnancy and Infant Loss Awareness Day and I will honor my four babies by doing the best I can for Lucas, Ben and Caroline.

Day 28.2

     One of the things I've learned this summer is that I can be depressed at any given point in time. I used to look back at my history with rose colored glasses and think that I was happier when I was healthy and focused. This summer proved me wrong.


     I thought I would use the summer to gain experience as a Pilates instructor and that having that purpose would help keep me in a positive frame of mind. I thought I'd use the time with my children to gain a better understanding of who they are becoming so that I could be a better mom in the tough situations. I thought I would use the freedom in the schedule to socialize more with my friends because I sorely miss them.
     The best laid plans...

Last night's recovery run game me some time to think

     I taught Pilates and I am happy to say that I'm thrilled with my decision to pursue the certification last year. I find immense satisfaction in the work of helping my clients to grow stronger and feel better. But I cannot derive my happiness from others. The positive work that would happen in the studio wasn't staying with me once I left. The time with my kids led to more questions than answers and many times over the summer I have wondered where I went wrong as a parent. The schedule turned out to be a lot more constricted than I anticipated and I found that I saw less people and had fewer social interactions than I did over the school year. And that was actually fine, because I felt so down that I couldn't really muster much of the effort it would require to socialize.

     So, I stayed home. I slept. I moped. I cried. But the thing is, I really kept trying to move past it all. I recognized that I was in a bad place and I kept trying to get myself out of it. I didn't ask for help though, which is something I regret after two months of suffering in silence. I'm not quite sure what would have helped. I mean, I was functioning- at least I think.

     All of this leads to today. Two weeks away from the start of the school year. I could look at this as two months that weren't lived to their potential, or I could see it as a lesson learned. I'm choosing the latter. I decided to train for a half marathon. I've scheduled my days to get back into running condition, because rose colored glasses aside, I'm happier when I'm running. I'm also happier when I'm writing. I'd like to start writing again- once a week for starters. The year ahead is going to be a busy one. The half marathon, the jobs, the middle child starting kindergarten, the soccer practices, the music lessons, the homework, the laundry.... oh, and the marriage, parenting and friendships.
I know I can do this- but I know it won't be perfect.

Day 27.2

     Some of you noticed that I have retreated these past few months. I finished my clinical Pilates certification process, took on work as an instructor, as well as continued the full time job of music teacher. My depression and anxiety have also deepened immensely during this time. We (my doctor and I) believe much of the cause is related to hormones (I'm no longer nursing Caroline), but the state of our world has also contributed significantly to my mental health.

     Maybe these past few days sparked something in me because the subject of breastfeeding was involved.

A treasured photo of my middle son and I

     I can't help but wonder if I was seeking asylum, would my child be ripped from my arms while I nursed?

     There is so much to unpack with the situation at our southern border, so I cannot address all issues in one post. I can however state that I unequivocally oppose the separation of families seeking asylum. I think nearly every parent I know would attest that they would do anything to keep their children safe. Those families seeking asylum are not crossing the border because it's easier, or because they don't want to go through the proper channels. They are doing so because they fear for their lives so much, they see no other viable option. I have never experienced that type of desperation, and I can only begin to understand what their situation must be like in order to resort to these drastic measures.
     I cannot fathom the people who have drawn a line in the sand and decided that these families must be separated. That these asylum seekers must be prosecuted. That nursing babies must be ripped from their mother's arms. That children should be placed in detention centers and be kept from their parents, devoid of human touch. My heart breaks.
     If you think this is an acceptable way to treat fellow humans, I cannot argue with you. If your heart is closed to the absolute horrors these children have faced and are currently facing, we don't see the world in the same way. This extends beyond politics, beyond race, beyond class. If someone is suffering and your immediate reaction isn't "how can I help them?", but rather "they didn't have to come here", you're lacking empathy. Most parents would not put their families in this situation if it was not necessary. Just because you cannot comprehend their reasons for seeking asylum, does not mean their reasons are invalid. It does not mean they deserve to be treated in such an inhuman way.

If I knocked on your door asking for help, with my son in my arms, would you turn me away? Would you put me in room, separated from my child and tell me you needed to wait until you figured out if I really needed help? Would you focus on the details of me being on your property uninvited?

Or would you help?

Day 26.2

     Happy International Women's Day.

This woman had a lot to learn

     If an alien ever came to earth and asked me to describe what it was like to be a woman, I think the best answer I could give would be that I feel like I'm simultaneously the cause of and the solution to all problems. Ok, maybe not the best answer. It's too complex an experience to sum up in sentence, but I guess it's the thought most on my mind right now.
      I cannot claim to speak for all women, but there is such an overwhelming weight that I carry on my shoulders. I should anticipate the needs of others as to prevent issues from arising. And if I can't do that properly, I should at least know how to fix the issue.

     I can remember before children, during difficult patches as I was first learning to deal with depression, where I would go into this dark place when I felt I was no good. I would mentally and physically beat myself up, insist that I caused whatever the problem may have been. House dirty? I am a slob and I don't deserve to live in a nice home. Pants fitting a little too tight? I'm not working out enough and if I truly cared about myself, I would. The examples could go on, but I think the point has been made. I was am very unforgiving with myself. And if you think that adding three lives, dependent upon my keeping it together helped, you clearly haven't been reading this blog...

     Since giving birth to Caroline two years ago, the addition of a female has forced me to confront many of the unnecessary expectations that I place upon myself. I don't want to raise her to be me. We all say that, I know- but I really don't ever want her to feel hatred toward herself because someone else's expectations weren't met. Or because her expectations were so outrageous that they realistically could not be met. I didn't have this reaction to the birth of my boys, and I think that is in part because we as a society have been raising our boys differently. However, over the past few years, there has been a change in the collective mindset. We are working on teaching our kids to be empathetic, independent, and aware of others. We are having honest conversations with our children. I couldn't imagine my parents or teachers talking so openly with me about mental health, emotions and struggles. Sometimes I wonder if I'm too open, but I guess that's another post...

     One of the most amazing things that Caroline does is that when she is stressed out, frustrated, or simply not in the mood for antics, she'll yell out "WALK AWAY". It's simultaneously hilarious, annoying, and inspiring. She takes care of herself and her needs in a way I aspire to! Granted, I don't think it would be appropriate for me to start yelling "WALK AWAY" every time someone placed unnecessary stress on me, but I do need to find a way to start protecting myself. I'm not the cause of all problems and definitely do not have the solution for them either. If I'm able to keep raising my daughter to follow her instincts and trust herself, maybe I'll finally start doing the same.